News
HSS Participates in International Experience Exchange with Patient Organisations (IEEPO)
The Haemophilia Society of Singapore (HSS) recently participated in the International Experience Exchange with Patient Organisations (IEEPO), a regional platform that brings together patient organisations to share experiences, strengthen advocacy capabilities, and explore approaches to more sustainable and patient-centred healthcare systems.
The programme covered a range of themes relevant to patient organisations today, including:
- – building effective partnerships for sustainable healthcare
– strengthening patient voices in advocacy
– the role of patient organisations in informing healthcare and policy decision-making
– perspectives on Universal Health Coverage (UHC) in the Asia-Pacific region
– translating ideas into action through practical project planning
A key part of the exchange was connecting with haemophilia patient organisations from Malaysia and Thailand. While healthcare systems across the region differ, discussions surfaced many shared challenges — including access to care, long-term treatment sustainability, and caregiver burden. The conversations were practical and candid, grounded in lived experience rather than theory.
So what does this mean for HSS?
Following these exchanges, HSS will explore opportunities in 2026 to collaborate more closely with haemophilia organisations in Malaysia and Thailand. The aim is to learn from one another, share approaches that have worked in different contexts, and identify areas where regional collaboration could strengthen advocacy and community support efforts.
These regional perspectives help situate HSS’s work within a broader context and will inform how we think about advocacy, partnerships, and community-building going forward.
For more information on Universal Health Coverage, see the World Health Organization’s overview:
https://www.who.int/news-room/fact-sheets/detail/universal-health-coverage-(uhc)