Thank you for taking the time to read this letter. I hope you will be able to understand haemophilia better and why people with this disorder need your help.
What is haemophilia?
Haemophilia is a rare inherited disorder that usually affects only males. The affected person suffers from a deficiency of a clotting factor which results in the inability of the blood to form clots normally and for bleeding to stop. They may bruise easily, and bleeding also occurs frequently in the muscles and joints with or without injury. When bleeding occurs in vital areas like the head, neck or abdomen, it can be fatal.
No cure is available for haemophilia at the moment. However, there is some form of treatment available to stop or prevent bleeding. In order to lead a normal life, individuals with haemophilia require frequent treatment for the rest of their lives.
Most patients cannot afford the expensive treatment. Hospitals offer some subsidy (between 50% and 65%), but it is still very costly for most patients.
HSS has taken up the task of helping our members in the form of an additional subsidy. We are thankful to those who have helped us through the years and hope that more can join in and contribute generously towards this worthy cause.
Individuals with haemophilia can and should lead a normal life if they receive adequate and proper treatment. They do not have to miss school or work. They do not have to suffer pain. They can contribute to society and enjoy life like any other person. But they need your help, and a little help can make a lot of difference.
Even with subsidies, haemophilia treatments may range from hundreds to thousands or even tens of thousands of dollars per month depending on the individual and the severity of the condition. This can be a tremendous burden on the family. We have also set up a welfare fund to help families with financial difficulties and your donation can mean a lot to them.
How to help
If you would like to make a donation, please click here to donate through Giving.sg or make your cheque payable to ”Haemophilia Society of Singapore”.
Please provide your NRIC number so that we may issue you a tax-exempt receipt. Your donation will be automatically deducted in your tax return by the Tax Authority of Singapore for tax computation purposes.
Besides financial support, there are also other ways to support us. Feel free to talk to us at:
FARRER ROAD POST OFFICE, P.O. BOX 273, SINGAPORE 915810
TEL: 62358166 (DR TAN HOOI HWA)
TEL/FAX: 64490289 (DR GAN KIM LOON)
DR GAN KIM LOON